Dear Autism, Epilepsy, 15q11.2, Mastocytosis and whatever else...please go away.....

Dear Autism, Epilepsy, 15q11.2, Mastocytosis and whatever else we've been diagnosed with,

Please go away, just for a month, week, day, oh heck, I'll even take an hour!  Don't get me wrong, Autism, Epilepsy, 15q11.2, Mastocytosis and whatever else we've been diagnosed with, you have made my children into the strong, amazing, artistic, little human beings who are full of love and giggles. 

That doesn't mean that I don't ever think about what they would be like if they were just typical little boys with typical little friends in a typical little school, eating typical little human food without, on typical little playgrounds playing with typical playground equipment all while convulsing, shaking, screeching, kicking, hitting, throwing things, throwing themselves, meltdowns that last hours over nothing at all,  hives, and all that other fun stuff we deal with on a day to day basis. 

We love all of our therapists and wouldn't change them for the world, they have become friends, family and show their true love and dedication to G&L...that doesn't mean we haven't dreamt (is that even a real word?) of a life with no therapy, running to specialists, blood labs, special needs equipment appointments, etc. My biggest decision used to be which shoes to wear or which shirt my boobs looked better in.  Now I have to make decisions everyday that affect G&L's entire life.  The Hubs and I always joke around that G might live in our basement one day so we need to move into a house with a basement.  We joke about it  because we realize it could very well be our reality one day.  

While we're on it?  Why do I keep saying typical and not normal?  My kids ARE normal.  Normal for them, and normal to us.  What is normal?  Everyone has their own sense of normal.  What's normal for my life, isn't he next persons normal. It's normal for me to want to wear hot pink and leopard print, it's normal for my friend JSM to wear all back, it's normal for my friend GWB to have red hair, It's normal for my friend JAN to have curly hair.  Autism and everything else is our normal, but sometimes it would be nice to have someone else's normal for a month, week, day or an hour.

So, like I was saying, Autism, Epilepsy, 15q11.2, Mastocytosis and whatever else we've been diagnosed with, has made our boys who they are, but I often wonder who they would be if the world didn't consider them as little boys with special needs, but typical little boys who have lots of love, giggles and smiles to share.

Signed,
One exhausted mama

I've Been A Bad, Bad Blogger

I just noticed after a friend pointed it out, that this is my one year blog anniversary.  My last post was May 8th. I didn't forget about my blog, life took over. The Hubs has been deployed, the boys have turned into three year olds, who may I add everyone warns you about the terrible two's....no one ever warns you about the terrorsit threes!!!  Good Lord these boys are testing my patience. 

A little update...OK, so it will be a long update. G&L were in summer school all summer. It was only half day, but it was better than nothing.  It helped them stay in the groove of school.  We also took them to the beach, Sea World and some local places.  They LOVED the beach!  The hubs and I got to go away for the night and headed to the coast.  We fell in love with a little beach town and are trying to make it our mission to move there.  Surprisingly for a little beach town they have some amazing Autism resources and special programs for the boys, which besides the hubs having a job, is our top priority.

The new school year has been off to a great start.  The boys are doing well and love their teachers.  Two of them are the same teachers from last year, which I think has helped with their transition.  L has become a talking MACHINE!  One day he came up to me and said out of the blue, "Hiya Mama!"  I about fell over!  A lot of his speech is repeating what he hears, and then then turns it into his own sentence, but I'll take it! Sensory wise, he still has issues but we've seen so much improvement!  We just switched to a new OT, so fingers crossed it goes well. L is also a ladies man!  He loves the ladies, young and old.

G has made some progress.  It's been a slow progress, but progress is progress in my book!  He now knows most of his animals and the sounds that go with them.  He's definitely become a stubborn little boy!  I think his stubbornness and drive to want to do things on his own more and more, will help in the long run. He's a boy who knows what he wants and goes after it, or throws himself on the floor and screams til we can figure out what he's after so we can help him.  He still has his basic food group of cream cheese, goldfish crackers, banana's, grapes and blueberries. 

Both boys have started horse therapy!  G jumped on the horse like he's been doing it his entire life...you know, all three years of it.  L was a little but more apprehensive but once he was on there he was loving it!  I was so proud of both of them for trying something new.  The hardest part was trying to get them to wear the riding helmets.  After we won that battle it was smooth sailing. Here they are on their horses!

Although I normally keep this blog about the boys, I just have to share that this mama bear just learned how to shoot a gun, so watch out!  I was terrified at first, I had never even touched a gun!  Thanks to my awesome friend M and a nice man at the range, they both made me confident enough to try it.  I seriously loved it!  It was empowering just to know, that I could do it, and it wasn't as terrifying as I thought it would be.  Do I want a gun in the house? No.  I'm not ready for that, I don't know if I ever will be, but at least I know I'm not scared of them anymore, and I know how to handle one.

                                                                        That's Me!
                                                         (Real women shoot in flip flops!)

My goal for the next few months, for all three of my bloggers fans, (Hi Mom, Dad and Sissypants) is too try to keep up with this thing.  I started it for a reason, and I hate that I let it go.  Gotta follow through Yo!

The Day I Realized I Can't Do It On My Own

I think as parents, regardless if your children have Autism or some other disability, you have that one point where you think you just can't go on for another minute.  I"m currently the VP of our local Mom of Multiples group, which has allowed me to meet so many strong, amazing women, that I otherwise may not have met.  There are many members in our group who serve in the military or have a spouse in the military, leaving us to often running the household on our own very often.

While talking to a friend this evening from the multiples group, we were sharing things we do to make it through.  I used to be the, "No, I don't want or need any help," person. Now I'm the, "YES!! Please help me person!"  I've finally started to admit to others that I have a secret.  Reguardless what others think, I am not super woman.  I'm damn tired.  G&L hardly sleep, they scream yell, meltdown and make me question my sanity.  I remembered the first time I realized I need to say, "Yes, I'll take your help."

Last summer I signed the boys up for a gymnastics class with some other friends.  I don't know what made me think this would be the best thing ever.  I have to say it was 99% awful!  L would run in circles and then go back to screaming, sometimes crying, G would either hide in a tunnel somewhere or hang on the door trying to leave.  Then there was that one day.  We got there a little early (big mistake) the boys didn't and still don't understand the concept of waiting, so they were screaming and crying and hitting me because I wouldn't let them run a muck while the other class was still going on.  I literately sat down in the middle of the gym, in front of complete strangers and just started crying. I couldn't keep it in. I tried.  The boys were just diagnosed with Autism, the hubs was deployed and I just wanted to hit the pause button.  What started out as teary eyes, turned into the ugly cry right there, in front of a bunch of moms and two years olds that I didn't know.  One sweet mom came up to me and said, "It's OK, we all have these days."  It was that day, that I decided if someone asks me if I need help, and I do, I will swallow my pride and accept it.  Once I made that deal with myself things got a little easier.  Autism is a Bitch. If people want to help to make our lives a little better or just offer some kind words, who am I to stop them.  I sometimes still say, "No Thank You" but then regret it minutes later while I have two children throwing themselves on the sidewalk having a meltdown.  Today a friend picked up some diapers for me.  Although it may not seem huge to some, G&L were having a horrible stimming day today, and the thought of bringing them in public to get stared at and play 20 questions with strangers wasn't my idea of fun. A saved the day by bring diapers and goldfish!

My point is, as parents I think we often want everyone to think we can do it all, that we are unstoppable.  Well, I'll tell you what this mama, knows she can't do it all alone, but she can do it with the help of her awesome friends.

This Showed Up in My Time Hop Today.

I had forgotten all about the first time I read the poem, "Welcome To Holland."  It describes so well what I was feeling at the time, and still am.  I thought I would share it here.




Welcome to Holland
Written by Emily Perl Kingsley (in 1987)

I am often asked to describe the experience of raising a child with disability - to try to help people who have not shared that unique experience to imagine how it would feel.
It is like this...

When you're going to have a baby, it is like planning a fabulous vacation trip - to Italy. You buy a bunch of guidebooks and make your wonderful plans. The Coliseum. The Michelangelo David. The Gondolas of Venice. You may learn some handy phrases in Italian. It is all very exciting.

After months of anticipation, the day finally arrives. You pack your bag and off you go. Several hours later the plane lands. The stewardess comes in and says, 'Welcome to Holland'. 'Holland? ' you say. 'What do you mean Holland? I signed up for Italy! ! ! I am supposed to be in Italy. All my life I have dreamed of going to Italy! '.

But there has been a change in flight plan, they have landed in Holland and there you must stay. The important thing is that they have not taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It is just a different place.

So you must go out and buy new guidebooks. And you must learn a new language. And you will meet a whole new group of people you would never have met before. It is just a different place. It's slower paced than Italy. It's less flashy than Italy. But after you have been there for a while and you catch your breath, you look around and you begin to notice that Holland has windmills, Holland has tulips, and Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy and they are all bragging about what a wonderful time they had there. And for the rest of your life you will say, 'Yes, that is where I was supposed to go, That's where I had planned'.

And the pain of that will never, ever go away, because the loss of that dream is a very significant loss, but if you spend your life mourning the fact that you didn't go to Italy, you may never be free to enjoy the very special, the very lovely things about Holland.

Yes, I Would Take It All Away If I Could!!

It's been so long since I've had time to write.  With the hubs being gone, I barely get a second to come up for air.  The boys have been sick for the past month, I'm fighting a staph infection and we're all pretty much exhausted!

Today we went to a birthday party for some twin friends third birthday.  The boys had a great time!  We got out of there just before them meltdowns so it was perfect timing!  The awesome LC came with us to help with the boys.  I really don't think I could have done it without her.  She is amazing with the boys, and they love her so much.  She's one of the few people we trust with G&L.  It's an added bonus that she teaches kids with Autism.

As World Autism Day is approaching (April 2nd)I've been seeing a ton of things online boycotting it saying it's not about finding a cure it's about acceptance.  World Autism Day brings awareness which helps with acceptance.  I've also read tons of blogs and posts from people saying it's not a disease so don't try to cure it.  I've said this before and I'll say it again.  I know many disagree with me but if I could take G&L's Autism away, I would in a heart beat.  It kills me to see them struggle, to see friends with babies that are only one, passing milestones that we dream of them reaching some day.  I look at it like this, G has epilepsy.  He takes medicine to help reduce his seizures.  If I could take his seizures away, I would in a heart beat.  If I could take his Autism away I would in a heart beat. If I could take away L's SVT and Mastocytosis, would I?  You bet!  The same way I would want to take away his Autism.  Why would any parent, or any human being for that matter, what to see a person, especially their child struggle to talk, communicate, walk, handle emotions, etc.  I know I can't take their Autism away, but I pray that one day they can fully communicate, be independent and maybe even have a job. I have the same dreams for my children that any parent does.  I shouldn't be ostracized for wanting my children to be nuerotypical!  No parent says, "Gosh, I really hope my child has Autism!"  Just because they have it, makes me no different. I want the best for my kids.

With all that being said, on April 2nd....LIGHT IT UP BLUE!  Wear a blue shirt, put a blue light bulb on your front porch, heck...eat a blue cupcake!  Autism is real, Inspire people, Educate people, Make people aware!  This girl will be decked out in blue!

Dear Autism, You are a B*tch!

This is a whiny entry.  Don't say I didn't warn you.  Today I want to give Autism and big FU!

So G&L had a field trip for school today and I was a chaperone. I thought I was going to lose my mind. L did great for about two hours which is really great for him. He just got super tired and started to slow down.  Even though he was exhausted he still managed to hold it together.

G was a MANIAC...people (not his class) were staring at him and me, like I was a big A-hole. He kept throwing himself on the floor, screaming, flapping, crying, yelling etc. Anytime I would try to pick him up to comfort him he would hit me in the face.  I know he was acting like this because he was way to overstimulated, but it doesn't make it any easier when your in the midst of it.  I was a little over zealous and didn't bring his stroller inside(he has a wheel chair stroller which has a compression clip on it, to help him and it's anti tip for when he throws himself). We had to walk about one city block back to the car and he kept throwing himself on the side walk and having a protest. I was pouring sweat by the time I got back to the car. One of his teachers asked if I needed help getting them back to the car, but stupidly, I said No. As G is throwing himself on the sidewalk people were walking by giving me side eye.  I may have said, "What? You've never seen a three year old with Autism?" to someone. What the hell is wrong with me? I need to accept peoples help! They are trained to deal with this! I just feel super defeated today. Autism is a bitch. The end.

Snow Apacolypse

It's been a while since I last posted.  We've had a busy couple of weeks here.  G&L both had colds, and then I got it.  Fun times!

The Dr. had to change G's seizure medicine since the one he was on turned him into a beast.  I think this one might be working, but I think he's still having some seizures. He goes back to the Dr in two weeks, so we'll see what he says.  Poor G.  Can't catch a break...ever.  Good things he's so freaking cute!! ;)

We had a huge (well, huge for the south), snow storm two days ago.  The best part about it was our heat stopped working in the middle of the night!  My children turned into icicle people!  It's was soooooo cold!  Thankfully the repair man was able to make his way out here even though the roads were super icy.  That man deserves an award! The same repair man saved us over the summer when our AC stopped working during a heat wave! L gave him a huge hug and forced him to snuggle before he left.  Thank goodness the guy has kids or it would have been like one of those moments when a person who hates dogs  has your dog begging them for attention and they're just kind of like, "Oh hi, dog, go away now"  Yeah, it had the potential to be that kind of moment.

It turns out our dogs love snow and keep wanting to go back out in it.  G&L on the other hand, well they are more then happy not to touch it.  They like looking at it from inside but aren't too fond of touching it.  Maybe one day I'll get them to dive right into it.  They're more like their mommy, they would rather a warm day spent in the pool.

Next week we have their IEP meeting.  Keep your fingers crossed for us that it all goes smooth and we get everything we want for them!  In less then two weeks is their, pirate birthday party!!  I have so much to do to get ready for it!  I'm pretty sure they have no idea what their birthday is, but I'm really excited for it!

Hope everyone is staying warm and if you live somewhere warm and tropical either send me a plane ticket or send some of the sunshine our way!

Not a day goes by...

Not a day goes by, that the word, "Autism" isn't always in my head.  I think about it while I'm grocery shopping, going to bed, watching movies, talking to people about other things, etc.  I think there was an occasion maybe a few months ago at a girls night out that I forgot for a minute.  Then, it happened...everyone started talking about their "typical" kids.  I love all their kids, I love them like they were my own, but I get jealous!

Why do I get jealous?  I get jealous at the funny things your kids say, the games they play, the crafts they make and when I hear them call you momma or dadda. I get jelous that while we're running from therapy appointments to Dr. appointments your going on play dates and shopping. I get jealous that all your kids can go to any preschool you choose, while we have to fight to get two spots in a special needs school...the only one in the county.  I'm jealous of your family vacations that we may never be able to take. Have I mentioned that I'm jealous that your kids can eat in a restaurant and eat real food and not throw it at people? G&L were delayed, but that was OK.  The specialist kept telling us they would catch up by the time they were two like most preemies.  We just kept telling ourselves that two was the magic number. Oh, I guess I need to throw in, that even though I get jealous of friends, I still love them. <3

As two was approaching we knew for sure our adorable little men did not catch up.  In fact, we were telling the Dr.'s when they were 1, that we knew they had Autism.  We were always told, they just have delays.  18 months came approached, and they grew more concered.  We hit the big two!  Suddenly, MRI's were ordered, blood tests were taken, more specialist were introduced we learned about genetics and chromosomes and epilepsy and Autism and just about everything else under the son.

I now walk around with a medical notebook about the size of two old school encyclopedia's that contains test results, evaluations, medical papers, research, studies done in other countries and perhaps some coffee stains and cookie crumbs (all that research can make a girl sleepy and hungry).

In just a few short weeks my babies are turning three!  I can already see what amazing little boys they are becoming.  They work so hard and they don't let anything hold them back. Of course they get tired and cranky and have day that they just don't want to do anything with therapy, but everyone has days like that.  Especially toddlers.  I still have big dreams for them.  A friend asked what could I see them being when they grow up.  Even with their disabilities I can see G being and Engineer.  He loves to inspect things close up, and figure out how they work.  Show this kid some gears and he'll be happy for hours.  I can see L being a math genius!  This kid loves numbers, math, watches, anything with numbers.  He must have gotten that from his dad.   The hubs is the one who got me through algebra.  Without him, I may have never graduated from college!

So, the gist of this post?  I'm not really sure!  Just throwing some stuff out there.  But to end on a good note, sweet L, would like to sing everyone a bed time story.

To Walk A Day In Our Shoes.

After talking to a friend yesterday, I realized not many people truly understand what it's like to live with two toddlers on the severe end of the Autism spectrum, developmental disabilities, rare diseases and epilepsy. While our house is filled with love and laughter, it's also filled with tons of therapy appointments, doctors, tears, stimming, hitting, kicking, yelling, crying and fear.  G&L are awesome and I wouldn't trade them in for anything, but I'm going to be extremely blunt.  This is not the life I imagined. I never imagined having to hold my children down so they don't hurt themselves or someone else. I never imagined having weeks filled with therapy, appointments and meetings.  I never imagined my children wouldn't be able to say momma or dadda. I never imagined my children having to go to a school for people with Special Needs.  I never imagined having to turn down play dates and parties and always having to be the first ones to leave because my children are overstimulated and about to have a meltdown.  There are a lot of things throughout life I never imagined.  If I could never imagine them, I can't expect friends and loved ones to imagine them.

Why do I turn down play dates?

It's pretty simple, G&L have a hard time being around other children.  They love adults and will snuggle with just about any adult in there path, but they don't handle other children well.  L had a few select children he likes (such as the W triplets) while G sticks to adults or stay in a corner and plays by himself.  They throw things and hit and yell and scream. I break out into a sweat trying to calm them down.

Why are we the first ones to leave birthday parties?

Besides the fact that G&L don't participate in group activities, L can not sit still for more then three seconds.  Unless there is somewhere for him to run and be in his own world, he can not handle it.  G normally just isn't really sure what's going on around him.  He gets confused and sometimes agitated.  We've been able to figure out when meltdowns are about to occur and high tail out of there before people have to witness the wrath of G&L and possibly ruin someone's party.

Why do we never go to activities at parks unless the hubs or another adult comes with us?

L is a runner, he is fast and he has no idea of his surroundings.  He could get lost in a millisecond.  It's my worst fear.  G can easily wonder off in the other direction.  Although not as fast as L when he sees something he wasn't to check out, he can't stop himself and calling out his name will not stop him, as he doesn't respond to his name. When they are stopped, meltdown ensues.  These meltdowns I speak of aren't your normal toddler tantrums.  They can last for hours and involve hitting and throwing. It can throw their entire week off and take a lot of work to get them recentered.

Why are we so strict about their schedule?

They thrive on a schedule, as do most with Autism.  They know what to expect and what's going to happen next.  When their schedule gets thrown off, it throws them for a loop and it can lead to a meltdown.  They know we get home from therapy, eat lunch and take a nap.  If we happen to do something out of that order, they throw themselves and cry.  I truly believe they have an internal clock that lets them know what time they are supposed to do everything.

Why do they do strange things?

It's simple.  To them, it's not strange. It feels good.  It's called stimming.  G stands on his head, screeches in high pitch tones, flaps his arms, laughs when nothing is happening, covers his eyes, twirls and tightens his muscles.  He does it when he's excited, scrared, bored, etc.  It just makes him feel good and it's comforting to him.  L covers his ears, spins in circles, stands on his head, follows lines, jumps, bangs his head and runs up and down the hallway. To him it feels good.

Why don't we take them to restaurants very often?

They have trouble sitting still, G throws food at people and they both have strong food aversions.  G more so then L.  If you order something and you're sitting next to G, he might start gagging just by looking at your food or smelling it.  Worst case scenario...he throws up, and then no one eats.

There you have it.  A little look into why we do things the way we do.  Even though we stick to schedules and have to avoid certain situations, we still have fun!  We find activities they like, and that they can do.  Everyday brings something new.  As their parents, we are tired, coffee doesn't have the same effect it once did and thankfully the good times outweigh the hard times.  Even though I never imagined this life, I wouldn't change it for anything.

Three Year Olds Are Not For the Faint of Heart.

My little babies, the ones that were holding on for hear life almost three years ago, are turning THREE in a month.  Whoever said the two's were "The Terrible Twos," are big, fat, ugly liars!  Now that we're approaching the three's, I can say, the threes are a million times worse! The pushing and hitting and tantrums have magnified, add Autism and a lack of communication skills and this momma feel like she's a full time Referee/Lion Tamer/Warden.

G started his seizure medication.  I'm thinking this isn't the right one for him.  Since he's started taking it, my sweet, laid back little boys has become a moody, cranky and perhaps possessed (but cute) little man.  It all started the day after his first dose of medication.  Needless to say, I have a call into the neurologist to see if this is normal and to see if we can try another medication. What if his seizures are what made him so calm and this is the new him?!?!  We're in for it if that's the case!  I've lost count of how many times I've been hit or kicked in the face since he started the medicine.  This just isn't my sweet boy.  He's also been extra stimmy this week.  My poor baby. On a posative note, he now likes "Bob The Builder."  When they sing, "Can we build it?" G yells out, "YEAH!!" in his sweet cute little G voice.

L recently had a little word explosion!  It's amazing!  Anytime it rains he screams, "It's Snow!!!"  He also says it when he rips up little pieces of paper and throws them in the air over his head!  He also handed some letters to the hubs the other night and told him to, "throw."  He's also started to say, "train."  They aren't really very functional words for the every day thing, but we will take it.  It's more then he's ever said, so I am prouder than proud!

A New Year, A New Diagnosis.

Here we are, 2014.  A new year a new go at life and all that other fun stuff.  What does it mean for G?  Another diagnosis.  If y'all remember about two weeks ago, G had a 72 hour EEG done.  The results were delayed because of the holiday's and the hospital being short staffed due to the season.  Well, we got the call today.  G has epilepsy.  He's having seizures on both sides of the brain, multiple times a day.  Tomorrow he starts taking Zorontine to see if we can get them under control.  The hubs and I were shocked.  We thought the test wasn't going to show anything.  When he was one, he had a sedated EEG which didn't show anything.  The Dr. said he can't say for sure he wasn't having seizures, but he wasn't having them during the test.  As time went on we kind of put it on the back burner and thought it was all due to his Autism.  It wasn't until two of his therapists had brought up that they thought he was having seizures, and a phone call or two, or three of four from me, that the neurologist decided to do the 72 hour EEG.  The therapists were right!

What are we hoping for?  We're hoping that maybe some of his delays and regression are due to seizures and with the right medication he may have some improvements. We're not expecting him to wake up the next day and start talking, but maybe over time it might help, maybe it'll help with his balance and/or maybe it will just help him be able to concentrate.  Maybe it won't make a difference.  Only time

In other news, G said "more" the other day and L started singing along with Bert and Ernie whenever they sing, "I LIIIIIIIKE YOOOOOOU!" Cutest thing ever!  L has also been a bit of a bully lately and pushing G around.  This age is no joke!

Farewell to 2013!

As we say goodbye to 2013, all I can think about is what a crazy year it's been.  We got our official Autism diagnosis, SPD, Hyperlexia, seizures, mastocytosis, genetic deletions and mutations.  We learned for every heartache, our family grew stronger, with every diagnosis we learned to work and love harder.  Most of all, we learned that we didn't lose the dream of the perfect child, we just had to change the path. To us our children are perfect for them, and perfect for us, if that makes sense. They have introduced us to a world we knew nothing about but learned more then we ever thought we would.

We are thankful that in 2013 we became a part of a strong Autism community.  We befriended amazing families and children we may otherwise not had the chance to meet.  We lost friendships and gained new ones with people that understand our journey and have been along for the ride with us.  To this, we will forever be grateful.  The amazing people we have met, weather it be other families, therapists, doctors and even strangers we crossed paths with have given us a shoulder to cry on, a pat on the back, cheered on our children and have became a part of our lives and love G&L for everything they are and encourage them to become everything they can be.  Words can not describe how thankful we are for these people.  I can not say enough for our friends that stepped up to the plate and embraced us, while others shied away.  You will always have a piece of our hearts.

We don't know what 2014 will hold for G&L.  I think it will be exciting, full of adventure and a lot of hard work.  They'll have their good days and bad and they will continue to teach us the power of perseverance.  From our small preemies to now almost three year olds, we have learned that almost anything is possible.  This past year we've learned so much from them.  We've learned it's OK to give up today, as long as you try again tomorrow, not to sweat the small stuff, because there will always be something bigger and better and most importantly, hugs from a toddler will cure just about anything.

Bring it on 2014!  We're read for what you give us!  This is going to be the year of G&L  Happy New Year Y'all!

Christmas in a Padded Room.

Merry Christmas and Happy Holiday's to everyone!  I'm Jewish, Hubs is Christian, so we do just about every  holiday under the sun and our children...well, they're most likely a bit confused.  Well, one day they might be confused.  Right now they don't really seem to understand much.

Yesterday started out as a normal day. Fighting, pushing, stimming...you know, the norm.  We finally pulled out the gifts (We don't do a tree because the boys can't be trusted around it), and they tore into the presents.  L was all about it, G wasn't so sure about it but once he saw the toys, I think he started to catch on.  He became fixated on the first toy, so the hubs and I kind of opened the rest of the gifts for him, but tried to get him to participate as much as we could.  L was all about that paper! The sounds of ripping paper, new toys, excitement and new sounds coming from the toys is enough to put anyone in a corner to rock back and forth.  It was definitely way too much for the boys. Live and learn.  They become SO overstimulated, the rest of the day was pretty much shot. It turned into a no napping, crying fighting super stimmy kind of day.  We really could have used a padded room in the house yesterday.  That's just for the hubs and I.  I think the kids would have needed there own.

 I haven't smoked in over 13 years but let me tell you.  I was jonesing for one to calm my nerves.  Rest assured, I did no such thing. Instead I ate a chocolate Santa. Not such a healthy alternative but at least I spared my lungs.  The boys are still a but overstimulated but are doing much better then yesterday.  I pray they take a nap today because this momma needs a nap in the worst kind of way!  I already have two cups of coffee down the hatch and it doesn't seem to be kicking in.  Thankfully the boys are playing nicely for the moment...with the help of Sesame Street in the background. MOTY!

We don't have any therapies this week.  I REALLY wish we had OT today to help recenter G&L.  Ot had done wonders for them. They could sure use it.  I think I could use come brushing a joint compression as well!  Sometimes when the boys are on all the swings and the huge ball pit during therapy I have to hold myself back from not diving in with them!  It looks like so much fun and so soothing.

The hubs parents are coming for a visit for the next week.  I'm hoping to keep the boys on schedule as much as we can.  They thrive on schedules.  Once their schedule is thrown off it can take a while to get back on.

In other news, L has finally started feeding himself with a spoon!  So excite!!  He's doing such a good job with it.  G has regressed a little bit, but he's trying.  L has also started to sing a lot. Although I love his singing, I would rather him not do it at 4am.  Kids with Autism need turn off switch so they could sleep at night.  I'm sure the Autism world would be a happier place if everyone could get a good nights sleep.  Two hours till nap time!!!!